Experiences of persons with early-onset dementia in everyday life : a qualitative study
Aud Johannessen, Anders Möller
Bok Engelsk 2013
| Utgitt | 2013
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| Opplysninger | Background: The small number of existing studies confirms that people with early-onset dementia (EOD) need special assistance from the beginning and as the disease progresses. There is a need to develop services to respond to the specific needs of persons with EOD. Aim: To find out how people experience living with early-onset dementia, and to assess the implications for practice and the development of further services. Method: Grounded theory, a qualitative method, with interviews of 20 informants (aged 54–67 years; 12 of them men) during 2010–2011. Findings: One category, the process toward a dementia diagnosis, covered two subcategories; describing changes and being diagnosed. Another category fighting for dignity describes how the informants try to maintain their quality of life, covering two subcategories; intrapsychic challenges and social challenges. Conclusion: Health services should give persons with EOD the ability to maintain contact with society and their voices should not be overlooked.
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