Narrating the New Predictive Genetics : Ethics, Enthnography and Science
Monica Konrad
Bok Engelsk 2005
| Annen tittel | |
|---|---|
| Utgitt | Cambridge : Cambridge University Press , 2005
|
| Omfang | 1 online resource (217 p.)
|
| Opplysninger | Bibliographic Level Mode of Issuance: Monograph. - Thinking futures -- Approaching translocations -- Foretelling foreknowledge -- Tracing genealogies of non-disclosure -- Reproducing exclusion -- Relinquishing exclusion -- Concluding remarks.. - This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.
|
| Emner | Human chromosome abnormalities - Diagnosis Moral and ethical aspects
Human chromosome abnormalities - Diagnosis Social aspects Anthropology Anthropology, Cultural Vis mer... Anthropology, Education, Sociology and Social Phenomena
Biological Science Disciplines Biology Chromosome Aberrations Disciplines and Occupations Diseases Genetic Phenomena Genetic Variation Genetics Genetics, Medical Health Occupations Mutation Natural Science Disciplines Pathologic Processes Pathological Conditions, Signs and Symptoms Phenomena and Processes Social Sciences Health & Biological Sciences Medicine Pathology SOCIAL SCIENCE Sociology / General antropologi sosialantropologi etikk medisinsk genetisk testing teori |
| Dewey | |
| ISBN | 0521540666. - 0521833140
|
